Honestly I would. It’s a full time job managing all the appointments. Let alone remembering all the forms and meds. Then there’s the checking up when it goes wrong.
Today’s were back to back. An MRI scan at 7.10pm on a Sunday (I was shocked by this one) followed by a procedure with gastroenterology today. I forgot details both times and got berated by the nurses. I understand they’ve provided me with all of the details in the reams of paper, handouts and leaflets but sometimes I get muddled up.
This time the MRI was a 45 minute car drive, followed by getting lost in the hospital and an argument. We arrived on time at 7.10pm for the appointment to be told I should have been there at 7 and be early for my appointment. Oops. Then when I mentioned they’d overlapped procedures and I was supposed to be drinking moviprep at 7pm and would I get out quick I had my head bitten off. Maybe the nurse had had a tough day, I get it but I also am anxious about procedures and not exactly having a ball! As the nurse put my headphones on I couldn’t stop tears leaking from my face. I lay in the ‘rave cave’ with magnetic hammers banging, ugly pop tunes funnelled into my ears, watching the strange led lights change colour and sobbed. I full on let out some of the built up pain all whilst staying absolutely still in case I messed up a picture.
Then today I was on the other side, a bmi hospital (referred through the Nhs) no medical insurance would touch me. I can’t fault their service and tacky hotel style private rooms. I guess you get what you pay for and the staff are less hassled.
So it turns out my knee is now considered ‘urgent’ I was referred back in May for a botched operation last November. Full of fluid after a full sinovectomy and a completely displaced knee cap. The bones in the joint are showing trauma and are bruised. For someone who apparently has lupus ‘under control’ it’s sure is playing up. On the up it looks like the other problems are just a lot of ibs.
I’m sure this is fascinating for all!