Anxiety girl

Hello anxiety that is making angry, scared and unsociable. Where are you coming from? I know I’ve accidentally missed some important meds and some sleep. I’ve worked quite hard volunteering, and it’s been Christmas, the most anxiety ridden time of the year. But clearly I’m a bad person who can’t manage myself.

I’ve got constant butterflies and I’m trying to do all the things to tell the negative thoughts to go away. But the voice gets stronger and I hear people talking about me and criticising as though they are in the room. I ignore it and carry on but it just gets louder.

Yesterday I didn’t have any sleep because I missed my meds the night before. The meds are the only way I sleep and without them it’s a nightmare of pain and bad thoughts and being fidgety. This combined with a migraine knocked me for six. I tried to take control of it but when the migraine kicked in I crumbled. I ploughed on and went to the cinema with my friends. I fed the migraine with darkness, drugs and caffeine. Eventually the pain subsided and only the tension remained. I felt exhausted and emotional and anything slightly negative made me catastrophise. I couldn’t talk to anyone and was convinced I just pissed everyone off. The wall went up and I teetered with a meltdown.

So I pulled my socks up and went to the pharmacy to get some emergency meds. I did my research and the Nhs website said to try your doctor (they were shut), then your pharmacy, then a walk in centre. I walked to the pharmacy in pain from swollen joints to be met with a pharmacist shaking her head. Instantly she dismissed me and told me she couldn’t help. I pleaded with her that I’d read the Nhs website and this is what it told me to do. She suddenly changed her story and said she could do it if I rang 111 for an emergency script. ‘Are you sure?’ I replied, the Nhs advice didn’t say this at all. But facing another day of suicidal thoughts and crippling anxiety was too much so I complied. ‘If they don’t get you one I’ll do it’ she said ‘but you have to try first’.

Half an hour later I was still sat in Boots. My migraine was returning and I was sat on hold to 111. The bright strip lighting flickered and pounded. I started to feel ridiculously hot and sweat soaked my clothes. My pain meds we’re wearing off. My knees, fingers, ankles, hips and back were screaming. I know I was beginning to fall over fast.

So we begged the pharmacy for somewhere quiet to sit. A super nice pharmacy assistant found us a small room and we sat with the lights off and a fan on. They asked if I wanted to go to hospital. No way Jose was I going just for meds, and a migraine, joint pain and anxiety. I agreed I would if I started vomiting , shaking or fitting.’ I explained that the best thing would be the just get home to bed. The pharmacist then changed her tact and said she’d only accept the 111 prescription and I’d need to go elsewhere if I didn’t get it in time. The inconsistency was a nightmare for my anxiety and I’d been there before to get them so was on their system. I had a bundle of paperwork to prove I was on them but it was a case of ‘computer says no.’ It was as though she was making it as difficult as possible and I was just annoying them.

The assistant, however, was wonderful and we chatted about mental health and chronic illnesses. I began to calm down and eventually spoke to 111 who said they’d get a doctor on it. We then went round in circles for the next 2.5 hours. 111 kept asking if I wanted to go to hospital as my symptoms were alarming. I didn’t want to go, the best place for me was home if only someone would give me the meds I’d manage what I’d manage everyday. I felt like a dick that caused a drama as eventually they tried to get rid of me from the pharmacy and ask me to start the whole thing again with another pharmacy. I felt like a burden and just wanted my bed.

After 3 hours, countless phone calls and giving my details over and over the prescription still hadn’t arrived. The doctor I spoke to was convinced I lived in Norwich. Erm no I said I live in Canterbury and had done for 17 years. I think I went to Norwich once about 12 years ago, it was dark and wet and I didn’t even see the town. So he continued to ask if I was visiting Canterbury. No I explained again, I live here, just like I’d told the two advisers I spoke to. He writes the prescription. Turn forward an hour and the script hasn’t arrived and so I ring them back. Im now in a flap that the store shuts in 15 minutes and I’ve sat here for no reason doing everything everyone is telling me to. I’m trying really hard to sit and be patient despite it making my pain worse. Speaking to the East Kent (not Norfolk) team again I will us to be near the end of the whole sham. Then I was told my surgery was Aldington . Nope I said I’ve given you my details 3 times it’s Chartham, perhaps Aldington is in Norfolk, I suggested!?

Anyway 10 minutes before closing the fax arrived and I was given 6 tablets in a bag by a rude and unsympathetic pharmacist. Lack of pain control and anxiety through the roof I’m a mess, I’ve convinced myself she hates me, all the staff have been talking about me and I never should have said I went to the cinema to hide from the light. I’m not sure who was judging me more, them or myself?

By this point every look, word and action becomes overwhelming. I’d tried to plan a nice New Years Eve with a cocktail menu and funny description bit that means everyone who was coming was included. My friend had rejected it by saying she’d only drink her own cocktail on the list. I knew her reasons were ok, she wanted to stick with one drink to not get too hungover etc. But in this mindset it’s rejection. The menu, lovingly made by me for everyone, went straight in the bin as soon as I got in. I felt as though I’d tried to make a nice gesture then been told I was controlling or had bad taste/ ideas. I was ready to give up and go to sleep and sulk.

Somehow in that moment I managed to pull myself out of it. I put on my dress and lipstick and found some inner strength to have a good night. I rebuffed the negativity and overwhelming thoughts and for the most of it laughed and had a genuinely good time. It didn’t mean I wasn’t squashing the ‘they all hate you’ voice constantly, but as dramatic as it sounds I survived another New Years! I’m proud of myself despite being exhausted because I won a battle.

This morning I’ve woken up with the butterflies. It’s the alcohol I drank acting as a depressant, I tell myself. It’s because you’re ill and tired. I start to work a little on a project I volunteered on. I poured everything I had into it but I feel like a failure. Every time I try to make something happen on it there’s obstacles, politics and I do the wrong thing. Now I’m utterly terrified of the meeting tomorrow and that I’ll be belittled. I can hear the conversations that are going on behind my back and I feel sick with butterflies. But it’s just another day that I’ll get through somehow.

I am anxiety girl and I think I’ve realised at the moment I’m not at my most well. So bear with me, I’m fighting it and it will be ok but I may be a little fragile.

As an after thought. Just like the meme says above I have 99 problems and 86 are in my head. If I’m working with you at the moment, or have been around you it’s more likely my sensitivity and brain than anything that’s real. Chronic worrier here gets all sorts muddled. I’m also excellent at hiding it all, even from myself.

Through the looking glass.

And the world spun on and she disappeared in between the gaps. The mirror looked like another room, but as she stepped through there was no drama or magic. She just slipped, into another place between the glass and out of sight.

It wasn’t a sudden event but had been a gradual process of slipping and fading. She once had burnt brightly and fiercer. She once had maybe been liked or even loved (or maybe duped into believing so). But friends who declared allegiance grew tired of her melancholy and as the dramas faded away, they too stopped calling. They wouldn’t be there with their promises a second time round. Their false declarations of solidarity and support made it feel worse.

Life was old news, just like her. She was unable to move forward, no energy to write a new chapter. Her brightness and glow from inside dissolved. Whilst those around flourished and grew from strength to strength and she wilted. She became a nobodies somebody. 

The world turned and as she did she slipped further into the shadows. Everything she’d achieved and earned burnt away as others shone so bright. The world had robbed her and left everyone else with something whilst she was nothing. 

She can’t do this world. She’s too tired, too lonely, too weak envious, too much, in pain and doesn’t want to anymore. Fed up of pretending, enough was enough. That’s when she discovered that the no place was a real place. A chance to step away and begin from scratch. It was her story, owned by her and she held the pen. She could write something new in a way that was  like no one else’s.

She held the pen and began to draw. The first thing she drew was a boat. Not grand, just a tiny vessel. Nothing more than a board bench and some oars. She climbed onboard and launched into the inky sea, and didn’t look behind even once.


Fight/ Flight

phlegm-fight-or-flightFight me again and I’ll stand once more,

I’ll see the good in your fist and take it again.

What’s another bruise on something already so broken?

I fight the tears that heave out in an ugly mess,

Bubbling with the mew of an animal in a snare.

Take your aim and I’ll defend you rather than myself,

I’ll help you drive the arrow home.

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Take flight, I won’t blame you,

Soar free on your own ego and tell yourself more lies.

Just don’t fly too high because your wings will burn.

I know, my bloody stumps where they were cut remain.

I fight because its all I know,

Just sometimes I want to glide on an upstream,

Feel the joy of the air and dare to be,

But it scares me so much I give in.

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Unable to focus I want to walk and not stop,

To drive into the night to an unknown destination,

To find my wings again and join the stars.

But I’m still here with the broken pieces,

Most of them are not even my own.

I glue the fragments and pieces, I fill the gaps,

It’s never enough.

 

Brain malfunction

Sorry this talks openly about suicidal thoughts. If you don’t want to know don’t read on.

You know you’re not right when you walk past a beautiful place and think ‘I want to die here’. It just seeps into your conscious like damp in an old house. Then thats it, your head fills with mildew and once again your at the bottom of the hole. You claw your way slowly back towards the light. Knees grazed, nails ripped and dirt in you hair you stand up one more time.

Disclaimer: I’m OK today which is why I can write this so no one send any police or ambulances or whats apps. If its any consolation I had to cross a railway track about 5 metres from said beautiful spot. I stopped and took my earphones out, looked both ways before carefully picking my way across the track. This is what mental health feels like, in a heartbeat you take care crossing the railway but want to drown in the stream. I constantly surprise myself. I got asked what stopped me I couldn’t remember at the time but I remember now. I didn’t have any stones to weigh me down, no painkillers to make me sleep and I thought if my phone gets wet I won’t hear music as my last thing. Rational hey?

Today I am thankful for:

  1. Beth who cares so much
  2. Sally and her words and depth
  3. Cherries

Today

The streets itch with discontent,

The map was off centre all day.

Childish tears threaten to break through the adult face.

The stone walls sweat yesterday’s rain,

I pound the concrete with sticky heat between the layers of my clothes.

The lipstick curdles and I wipe it raw with paper.

 

Fingers bandaged from no fight,

I’m neither citizen or tourist just broken knees.

Guts cramping propel us from cafe to cafe.

Food sticks in my throat as I push it round the plate.

My hands tremble as they try to raise the cup,

Thick black coffee drives my blistered feet.

 

Something is not right in the world, I’m not quite here or there.

It’s ugly criminals saunter like they own the roads.

We ask ‘why are people so cruel?’

Then the man stops to pick up some other’s rubbish.

A women tends the silk and velvet with more love than she knows.

The smile of the woman on the bus is the most beautiful thing I’ve ever seen.

 

The flash from no camera, the sky opens and moans.

White then orange makes my heart pound.

‘Don’t walk on the floor with bare feet’ she says.

It makes me want to feel it’s force, to feel alive,

to take off my socks and dance with life on the cold tiles.

I bleed with the sky and prepare to begin all over again.

Sick in the head

So lets have a little chat about mental health… well my mental health.

I actually don’t know where to start. From about 15 I experienced manic and depressive episodes. I’ve also had severe anxiety for a long long time. There have been a plethora of traumatic life events and my physical health is screwed. But the past few years have been relatively stable for me compared to the past. It’s had its ups and downs.

What I didn’t realise was my relationship, which once allowed me to be me, was becoming toxic. I was being suffocated and dimmed until I didn’t believe in my self any more. At home I was walking on eggshells incase I upset the one person that made me so happy and free. Or shouting because I was literally being ignored and he pretended I wasn’t speaking; I thought I was going crazy. In fact I was told repeatedly I was. I’d be ignored for sleeping on the wrong side of the bed, and cry on my own whilst he went out.

I was lured into staying at home whilst he went out because of my illness and I withdrew more and more. I tried to manipulate time together and control this not realising what I was doing and that something was deeply wrong. Anxiety at leaving the house was returning and I never spoke about my life and what I was doing. I’d listen to hours on end to his problems and help him solve them. Coaching the other person to be a better person and neglecting myself.

My physical health was going hand in hand with this silent gagging. I felt permanently guilty for the unexciting, fat, ugly monster I’d become. He always said it would be ok and I was still beautiful, these were lies.

Then there was the courting other people. Horrid toxic people. My intuition has always been good and alarm bells were ringing. But I was forced to let these people into my home and berated for questioning it. Then came the series of public humiliations in front of them. He was no longer fighting for me, or with me, but hurting me.

Alongside this my physical health with auto-immune was slipping and I couldn’t cope with any of it. I was going to appointments on my own now and feeling very frightened. He got angry when I needed an ambulance. In the end he had to be told it was odd that you’d rather be at work (or maybe fucking that girl) whilst I was having a lumbar puncture.

I was fighting a battle with the world to say I really am sick, please believe me, I’m not a fraud. I’d drive to work in so much pain I’d stop and vomit 3 or 4 times along the way. I let people down and got so muddled. It was like daily torture. I earned less and less and he made me feel like a burden. I desperately tried to keep earning and budgeting. Quite often I was covering up his big mistakes and lavish lifestyle. I agreed to put my name on a huge loan so he could get a brand new motorbike we couldn’t afford that was impractical and feeding his image. I was made to feel bad for not being able to ride it.

I heard my friend’s story about domestic abuse and alarm bells rang. I ignored them because I still believed in him but it was there, I was in love with a narcissist:

  • Love Bombing – He made me feel so special, this was it and I was the one. He promised me the absolute world and went above and beyond to win my love.
  • They can’t admit when they’re wrong. – He never ever said sorry even if he was proven wrong. You’d make me beg for forgiveness or tell me I was going mad.
  • Conversations are one-sided. – in the end I was helping him run his business but he didn’t even realise I was directing a play!
  • They’re really, really ridiculously good looking. I was made to listen to hours of how he got girl’s and guy’s numbers over the bar and was the most good looking guy at work. I was always made to feel lucky then ugly.
  • Their brand of empathy is self-motivated. Being the kindest most generous person in public was his forte, and it tricked us all into thinking he was so kind. It wasn’t like this at hime, the brooding moods and hours of silence or being picked apart showed that.
  • Your needs and requests don’t matter. So in the end I got so sick I couldn’t move, I felt terrible that he was my carer. I’d not ask for ages but then not being able to get upstairs for meds or into the kitchen for food. I’d guiltily ask for help or painkillers. He’d then stretch the time out as long as possible till I’d beg like he had some kind of control. It was torture yet always my fault. And the same was happening with our dogs as he neglected them then blamed me.

So towards the end I couldn’t work and was in and out of hospital. The experts were still saying it was OK, I was not OK. I was in pain most of the time and not coping, I was taking a lot of painkillers and 9 different meds everyday. I didn’t go out or forced myself to be exciting then be in bed for a week in agony.

All of this went on relentlessly and I was trapped in a cycle of pain, misery, bullying. Then we had to move house, I was exhausted. I knew he was cheating but made to feel so awful I didn’t have the self worth left to confront it. I was fucking up work and working like a maniac. I suddenly realised I was having suicidal thoughts.

I was very scared by this point and spent hours fantasising and planning. I tried to voice it but he didn’t listen. I got so sick with migraine I needed an ambulance but he wouldn’t ring one and then abandoned me.

Then out of hospital a week later I had another crippling migraine. I left the wedding we were at telling him why I couldn’t stay. I drove myself 45 minutes home then the vomiting came. I text to see where he was. I now know he was cheating. He came home and his only words were ‘its over there’s no talking about it’. Whilst I was at my weakest and most vulnerable he baled.

That was it for me. The switch finally flipped. My first reaction was flight, so I ran, my head full of ways to hurt myself. But I walked it out and bravely returned to the house to ask like an adult to talk about it. I wanted a reason why, to fight through it. To understand the cruelty and to be stripped of all control over my own life. I know now that he chose this moment because I was so sick and he is a coward. I also think he was in a corner and cheating. This is not how you treat someone after 6 years of building a life together. My voice was smaller than ever.

In one moment my life, trust and my home had gone. I already had lost my work and income and then my health was so bad. There was not an area of my life that was OK.

So I decided to end it. Not for attention or a cry for help. I just wanted peace. It’s hard to say I didn’t want to kill myself but it’s true. I really just wanted to sleep and not wake up. In that moment the pain of the world was just too much and I couldn’t go on. I panicked. I still in a way am annoyed that I wasn’t allowed to make my own choice.

It happened again two weeks later when he said the most terrible things to me after I found proof of the cheating. Even I didn’t realise how low he’d go in the moment of my pure brokeness. Telling someone they are mental and need help doesn’t help them but makes them panic. Panic that everyone will agree and say ‘lucky you escaping from that’. Saying ‘its been dead for years’ is the most hurtful thing he could ever ever say to someone who invested so much. There are things that were said that I cannot even write now as they are too painful. They make me want to vomit they were so degrading and bad. I flipped, went through anger and crazy. I shouted as loud as I could for help to those around me and I was saying I’m not OK. The next thing I knew were the police were climbing through my window and threatening to section me. I had tried to sleep again.

See there’s always a story behind the mental health and mines supposed to be down to my physical health and nervous system damage on top of all of this trauma. I’m not ashamed of my actions at all. I only worry that I still am a burden to others and let them down or scared them silly.

I didn’t actually mean to write this post at all. It was going to be something more generalised about mental health. But it kind of all fell out onto the page. One of the hardest things I’ll ever write and this is so paired back.

I’m also not a victim, I don’t want you to see me as that, I am always trying to fix things. This time my energy and life force ran out. My buttons were pressed. My control taken away. I really did choose flight but now I know I am full of fight. Bring it on. I survived this and now I want to do it my way.

 

We could all be a little kinder…

I came across this list earlier on Buzzfeed

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I love the fact it just asks us to spend a little time on ourselves before we hit crisis. I wish I could take my own advice. Slowly, slowly I’m changing my routine to include breathing and positivity. Todays tasks were to make candles, get the dogs back and watch Bake Off. Tick, tick and almost tick (it’s on in 10 minutes).

A lot of chronic illness comes with a spoonful of guilt. We let so many other areas of our lives slip so therefore believe we don’t deserve self care and kindness if we have cancelled a meeting or been late on an assignment. I know I’ve posted this before but it is so true: You can’t pour from an empty cup. Take care of yourself first.

So I’d be interested to know what you do to take care of yourself?

P.S. Today I’m grateful for:

  1. The garden and it’s ability to keep on growing no matter what
  2. Rose – In plant form, scent or lemonade.
  3. The crisis team who are keeping me afloat

 

 

 

Crisis

I don’t want to write in the moment of pure dispair and panic because I’ll just vomit out all the emotions on the page. I’m post meltdown and a very dark place which involves googling ways to ‘go to sleep’.
It’s all too much to even put into words. I’m dizzy when I stand up and there’s acid fire burning a hole in my lungs. My heart feels sore and dull. Prickly heat rises through my body into my arms before I want to pass out. The thoughts come so fast and the pain. Pain I can only describe in physical terms because I’m so used to it.

These are my reasons I feel so low:
I am in constant pain and always tired

I’m worn down by feeling ill all the time

I’m a prisoner of the disease that’s robbed my life

I’m sleeping on a mattress in my sister’s house because I’m too scared to go home

I’m a burden to those around me

I let people down all the time

I can’t to the job I love

I can’t do most things without being exhausted 

I’m heartbroken and grieving

I have nothing to show for 35 years of fighting

Yes it’s a selfish list all about me. I know this and this makes me feel guilty too. I’m fighting this so hard, harder than you’d imagine. But this nasty little thing creeps up on me forcing me down a one track alley…

Parenting Yourself

So the last few weeks have been living in crisis. Caused by pain, mental health, relationships, work and income. All at once, in one big lump. Pow, taken out by the world!

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3 emergency hospital trips, 1 breakdown, 1 job lost, 1 relationship ended… It’s so easy to get swallowed into the negative and not see the positive. But the positive moments have been about the friends I have and love dearly.

What it has done is made for a very interesting discussions about life. It’s been useful to surround myself wth my friends and those who have been in the same place.

Today’s post is dedicated to Helen who has been amazing. Having been through the same shit she’s been one of the most resilient people I know. Oh and she’s a reflexologist too. I cannot recommend her enough for any kind of healing!

12068846_939860746086783_403464652320274183_oHer Facebook is here, and website is here

A few of her wise words include:

“So the world currently feels like a very scary, lonely & overwhelming place yeah. It’s all shit, there’s no-one you can rely on and you’ve just not got any more energy to keep fighting it all 😭

I’m not in your head but I can recognise it: I mean, when even your own fucking body seems to hate you what’s the point eh FFS!

But there is a point. It’s horrific right now & you prob can’t see any light.  Let me reassure you, there is a light. It’s called resilience, a strength you didn’t know you had, friends & vague contacts that will step up & help you find a path where you didn’t know there was one. It’s chaos, but out of the storm there’s new horizons, ones you’d never dreamt of before.

I’m not saying it’s easy, that’d be a lie. Trust me Vicki, it’s an ending but also a new beginning. It hurts like fuck. That hurt eventually turns into the determination your new self will rely on. Among my closest friends we no longer call it a ‘breakdown’ but a ‘breakthrough’ because in order to be true to ourselves the pain has to be faced & the old patterns need to be broken.

People don’t understand what it’s like living in pain every damn day. For doing that in itself , AND continuing to work as long as you have, you have a strength that most do not. Be proud you’ve made it this far. And with or without a bloke, your journey is only just beginning.”

These words were my solace in my darkest moment. They became a mantra to cling to. I love the idea that when in crisis experiencing a breakthrough rather than a breakdown. Maybe my list should look like this:

3 emergency hospital trips signs that I need to ask for help with my conditions, 1 breakdown breakthrough, 1 job lost assessment of my career, 1 relationship ended  6 close friendships formed and countless true friendships beginning … It’s so easy to get swallowed into the negative and not see the positive. But the positive moments have been about the friends I have and love dearly.

Today in our feet pampering session we discussed parenting. She suggested writing down all the things we want from our parents (theoretical ones if you are reading this mum and dad). Then you cross out parents and make it a list for how you want to treat your self. So here is goes…

I want my parents to be I want myself to be:

  • Supportive
  • Non judgemental
  • Not to know best for me but accept I know this
  • Kind
  • To listen without an answer
  • At the end of the phone
  • Strong
  • Not pull me into their dramas!
  • Not to take on my illness as something they’ve done or passed on
  • Trust me

Well that was a lot of writing and self led therapy for one day, I’m off to bake a cake!