Reality

For all those that may think my 6 months off is a lark heres a link to a little video. Do you know what it is and it isn’t fun, just like working is and isn’t. This is what most days look like unless I’m off finding a small break in the misery like flying a kite or walking my pup.

Plus I’m broke, on the verge of homelessness and generally a bit of a whinge.

I also carry massive amounts of guilt for not working.

https://www.facebook.com/plugins/video.php?href=https%3A%2F%2Fwww.facebook.com%2FChronicIllnessOnThemighty%2Fvideos%2F1374582545896823%2F&show_text=0&width=560

Labels

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I have eight labels around my neck,

Compartments that you put a piece of me into every time it breaks.

Sometimes you take the label out and look at it with that silent furrowed brow,

You take out your pen and scribble it out.

 

I have eight labels stamped on my being,

Explanations for being not quite right.

I read them so often I forget my own name,

When you doubt them I question my existence and identity.

 

 

I have eight labels stuck to my skin,

You can’t always see them but I feel they’re still there.

Each is an instruction to give me something to swallow,

A licence to brew 14 medicines in one body and see what happens.

 

Sometimes I wear my labels with pride,

Like badges on a lapel and membership to a club.

I want to tell people how heavy they are,

When you question them I feel lost and defensive.

 

There are 8 labels around my neck,

I’m still me.

 

 

 

Fight/ Flight

phlegm-fight-or-flightFight me again and I’ll stand once more,

I’ll see the good in your fist and take it again.

What’s another bruise on something already so broken?

I fight the tears that heave out in an ugly mess,

Bubbling with the mew of an animal in a snare.

Take your aim and I’ll defend you rather than myself,

I’ll help you drive the arrow home.

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Take flight, I won’t blame you,

Soar free on your own ego and tell yourself more lies.

Just don’t fly too high because your wings will burn.

I know, my bloody stumps where they were cut remain.

I fight because its all I know,

Just sometimes I want to glide on an upstream,

Feel the joy of the air and dare to be,

But it scares me so much I give in.

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Unable to focus I want to walk and not stop,

To drive into the night to an unknown destination,

To find my wings again and join the stars.

But I’m still here with the broken pieces,

Most of them are not even my own.

I glue the fragments and pieces, I fill the gaps,

It’s never enough.

 

Brain malfunction

Sorry this talks openly about suicidal thoughts. If you don’t want to know don’t read on.

You know you’re not right when you walk past a beautiful place and think ‘I want to die here’. It just seeps into your conscious like damp in an old house. Then thats it, your head fills with mildew and once again your at the bottom of the hole. You claw your way slowly back towards the light. Knees grazed, nails ripped and dirt in you hair you stand up one more time.

Disclaimer: I’m OK today which is why I can write this so no one send any police or ambulances or whats apps. If its any consolation I had to cross a railway track about 5 metres from said beautiful spot. I stopped and took my earphones out, looked both ways before carefully picking my way across the track. This is what mental health feels like, in a heartbeat you take care crossing the railway but want to drown in the stream. I constantly surprise myself. I got asked what stopped me I couldn’t remember at the time but I remember now. I didn’t have any stones to weigh me down, no painkillers to make me sleep and I thought if my phone gets wet I won’t hear music as my last thing. Rational hey?

Today I am thankful for:

  1. Beth who cares so much
  2. Sally and her words and depth
  3. Cherries

Sick in the head

So lets have a little chat about mental health… well my mental health.

I actually don’t know where to start. From about 15 I experienced manic and depressive episodes. I’ve also had severe anxiety for a long long time. There have been a plethora of traumatic life events and my physical health is screwed. But the past few years have been relatively stable for me compared to the past. It’s had its ups and downs.

What I didn’t realise was my relationship, which once allowed me to be me, was becoming toxic. I was being suffocated and dimmed until I didn’t believe in my self any more. At home I was walking on eggshells incase I upset the one person that made me so happy and free. Or shouting because I was literally being ignored and he pretended I wasn’t speaking; I thought I was going crazy. In fact I was told repeatedly I was. I’d be ignored for sleeping on the wrong side of the bed, and cry on my own whilst he went out.

I was lured into staying at home whilst he went out because of my illness and I withdrew more and more. I tried to manipulate time together and control this not realising what I was doing and that something was deeply wrong. Anxiety at leaving the house was returning and I never spoke about my life and what I was doing. I’d listen to hours on end to his problems and help him solve them. Coaching the other person to be a better person and neglecting myself.

My physical health was going hand in hand with this silent gagging. I felt permanently guilty for the unexciting, fat, ugly monster I’d become. He always said it would be ok and I was still beautiful, these were lies.

Then there was the courting other people. Horrid toxic people. My intuition has always been good and alarm bells were ringing. But I was forced to let these people into my home and berated for questioning it. Then came the series of public humiliations in front of them. He was no longer fighting for me, or with me, but hurting me.

Alongside this my physical health with auto-immune was slipping and I couldn’t cope with any of it. I was going to appointments on my own now and feeling very frightened. He got angry when I needed an ambulance. In the end he had to be told it was odd that you’d rather be at work (or maybe fucking that girl) whilst I was having a lumbar puncture.

I was fighting a battle with the world to say I really am sick, please believe me, I’m not a fraud. I’d drive to work in so much pain I’d stop and vomit 3 or 4 times along the way. I let people down and got so muddled. It was like daily torture. I earned less and less and he made me feel like a burden. I desperately tried to keep earning and budgeting. Quite often I was covering up his big mistakes and lavish lifestyle. I agreed to put my name on a huge loan so he could get a brand new motorbike we couldn’t afford that was impractical and feeding his image. I was made to feel bad for not being able to ride it.

I heard my friend’s story about domestic abuse and alarm bells rang. I ignored them because I still believed in him but it was there, I was in love with a narcissist:

  • Love Bombing – He made me feel so special, this was it and I was the one. He promised me the absolute world and went above and beyond to win my love.
  • They can’t admit when they’re wrong. – He never ever said sorry even if he was proven wrong. You’d make me beg for forgiveness or tell me I was going mad.
  • Conversations are one-sided. – in the end I was helping him run his business but he didn’t even realise I was directing a play!
  • They’re really, really ridiculously good looking. I was made to listen to hours of how he got girl’s and guy’s numbers over the bar and was the most good looking guy at work. I was always made to feel lucky then ugly.
  • Their brand of empathy is self-motivated. Being the kindest most generous person in public was his forte, and it tricked us all into thinking he was so kind. It wasn’t like this at hime, the brooding moods and hours of silence or being picked apart showed that.
  • Your needs and requests don’t matter. So in the end I got so sick I couldn’t move, I felt terrible that he was my carer. I’d not ask for ages but then not being able to get upstairs for meds or into the kitchen for food. I’d guiltily ask for help or painkillers. He’d then stretch the time out as long as possible till I’d beg like he had some kind of control. It was torture yet always my fault. And the same was happening with our dogs as he neglected them then blamed me.

So towards the end I couldn’t work and was in and out of hospital. The experts were still saying it was OK, I was not OK. I was in pain most of the time and not coping, I was taking a lot of painkillers and 9 different meds everyday. I didn’t go out or forced myself to be exciting then be in bed for a week in agony.

All of this went on relentlessly and I was trapped in a cycle of pain, misery, bullying. Then we had to move house, I was exhausted. I knew he was cheating but made to feel so awful I didn’t have the self worth left to confront it. I was fucking up work and working like a maniac. I suddenly realised I was having suicidal thoughts.

I was very scared by this point and spent hours fantasising and planning. I tried to voice it but he didn’t listen. I got so sick with migraine I needed an ambulance but he wouldn’t ring one and then abandoned me.

Then out of hospital a week later I had another crippling migraine. I left the wedding we were at telling him why I couldn’t stay. I drove myself 45 minutes home then the vomiting came. I text to see where he was. I now know he was cheating. He came home and his only words were ‘its over there’s no talking about it’. Whilst I was at my weakest and most vulnerable he baled.

That was it for me. The switch finally flipped. My first reaction was flight, so I ran, my head full of ways to hurt myself. But I walked it out and bravely returned to the house to ask like an adult to talk about it. I wanted a reason why, to fight through it. To understand the cruelty and to be stripped of all control over my own life. I know now that he chose this moment because I was so sick and he is a coward. I also think he was in a corner and cheating. This is not how you treat someone after 6 years of building a life together. My voice was smaller than ever.

In one moment my life, trust and my home had gone. I already had lost my work and income and then my health was so bad. There was not an area of my life that was OK.

So I decided to end it. Not for attention or a cry for help. I just wanted peace. It’s hard to say I didn’t want to kill myself but it’s true. I really just wanted to sleep and not wake up. In that moment the pain of the world was just too much and I couldn’t go on. I panicked. I still in a way am annoyed that I wasn’t allowed to make my own choice.

It happened again two weeks later when he said the most terrible things to me after I found proof of the cheating. Even I didn’t realise how low he’d go in the moment of my pure brokeness. Telling someone they are mental and need help doesn’t help them but makes them panic. Panic that everyone will agree and say ‘lucky you escaping from that’. Saying ‘its been dead for years’ is the most hurtful thing he could ever ever say to someone who invested so much. There are things that were said that I cannot even write now as they are too painful. They make me want to vomit they were so degrading and bad. I flipped, went through anger and crazy. I shouted as loud as I could for help to those around me and I was saying I’m not OK. The next thing I knew were the police were climbing through my window and threatening to section me. I had tried to sleep again.

See there’s always a story behind the mental health and mines supposed to be down to my physical health and nervous system damage on top of all of this trauma. I’m not ashamed of my actions at all. I only worry that I still am a burden to others and let them down or scared them silly.

I didn’t actually mean to write this post at all. It was going to be something more generalised about mental health. But it kind of all fell out onto the page. One of the hardest things I’ll ever write and this is so paired back.

I’m also not a victim, I don’t want you to see me as that, I am always trying to fix things. This time my energy and life force ran out. My buttons were pressed. My control taken away. I really did choose flight but now I know I am full of fight. Bring it on. I survived this and now I want to do it my way.

 

We could all be a little kinder…

I came across this list earlier on Buzzfeed

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I love the fact it just asks us to spend a little time on ourselves before we hit crisis. I wish I could take my own advice. Slowly, slowly I’m changing my routine to include breathing and positivity. Todays tasks were to make candles, get the dogs back and watch Bake Off. Tick, tick and almost tick (it’s on in 10 minutes).

A lot of chronic illness comes with a spoonful of guilt. We let so many other areas of our lives slip so therefore believe we don’t deserve self care and kindness if we have cancelled a meeting or been late on an assignment. I know I’ve posted this before but it is so true: You can’t pour from an empty cup. Take care of yourself first.

So I’d be interested to know what you do to take care of yourself?

P.S. Today I’m grateful for:

  1. The garden and it’s ability to keep on growing no matter what
  2. Rose – In plant form, scent or lemonade.
  3. The crisis team who are keeping me afloat

 

 

 

The school of life…

It’s a bit quiet over here because I’m on the move. Anyone with chronic illness will no that travel is a killer. Anyway I discovered the YouTube channel The School of Life who make videos each week all about emotional education. Here’s the link to their video on anxiety. I also love their other projects such as The School of Life has a wonderful website full of resources. I’m looking forward to delving into their Book of Life sister website that tracks modern living through all of our major cultural influences.