Spoonie Solutions

Hands up who has #spoonie problems? Me too, I probably whine about them a lot. You’ll know this if you follow my ig stories! So what’s this #spooniesolutions all about? Well it’s turning the hashtag #spoonieproblems on it’s head. Before you cry in protest its not because the problems are not valid, quite the opposite in fact. They matter so much, and need to be highlighted. #spooniesolutions is all about identifying the problems and shouting about them. Then I want to attempt to discover some answers.

This all came about after a combination of discussions, and a personal review of my blog and Instagram. I had a big appointment recently in which I found that, as expected, I have an area of hyperperfusion in my brain. In the appointment I took it in my stride, but as the results sank in I felt very upset. Part of me wanted to jump for joy that I have a positive (as in something showing up not a feel good) result, and part of me was scared and in shock. It explains a lot including migraine, and serious mental health issues, confusion and fatigue. But it broke my heart to think that it is active in the blood vessels in my brain. For my own sanity I had to recognise my upset (spoonie problem) but find a way to deal with it (spoonie solution). For the first week I cried and it still makes me cry now. But I am getting there.

I’m in a position now in which I can reflect on how I’ve survived through the past few years. Yes that’s dramatic but it has been survival. I can hand on heart say that it’s been through living life slowly and taking time to nurture myself by being creative and living a more simple life. I want the solutions to #spoonieproblems to reflect this but also offer a range of approaches that I hope will be useful to me and anyone else that is out there and reading. They’ll include practical advice, campaigning for change, and most importantly opening up the issue for discussion.

As a veteran spoonie I feel qualified to address the issues from an insider’s perspective. But to ensure that the solutions given are thorough and actually useful I will be consulting with other spoonies via the comments here, Instagram and in real life. I will also include resources from medical practitioners, other websites (such as The Mighty), apps (such as HealthUnlocked) and relevant organisations.

I have a few solution guides planned including travel and holidays (vacations), everyday travel, work and benefits, and hobbies. All of these will include parts of my personal story and anecdotes. But I will approach how to deal with them by being creative and living slow.

Please don’t be shy, I’d love to help your share your story and looked at spoonie problems together. Let me know in the comments, via social media or email.

Look forward to hearing from you…

People are rubbish. A guide to reducing personal waste.

We really are, we create nothing but waste. First of all pop over to People are Rubbish on Instagram to see just how bad we are! Rubbish tells a story, one in which we are the villains…

Last year I began ‘slow living’ with the goal of simplifying life, buying less and better quality. As an extension of this I began a personal war on waste. Then just before the new year the BBC’s series Blue Planet was released and the fish swimming in our plastic waste broke our hearts. If you missed it you should watch it here.

It is very clear we have to make a change to the way in which we live and consume. When even a Tory PM declares a need for drastic change on an environmental issue there must be a crisis. “May’s speech, unveiling a much-heralded 25-year plan for the environment in England drawn up by Michael Gove’s environment department with input from pressure groups, focused heavily on plastic waste, which she called “one of the great environmental scourges of our time”. https://www.theguardian.com/environment/2018/jan/10/theresa-may-proposes-plastic-free-supermarket-aisles-in-green-strategy

I don’t want to waste time here giving any more reasons to change. But if you need one watch this turtle mama.

Ok, ok statistics and preaching over. What we need to do is take personal responsibility and make changes now. I am going to share with you a few easy starters that I’ve found have worked to help you get started.

Clothing

Step one is to fall in love with what you already have in your closet. Make a capsule wardrobe thatl works and go with it.

As you may have seen in a previous blog post I’ve been using the Cladwell app. You basically create your wardrobe from a combination of their items and uploading your own. From this is gives you a choice of daily outfits. Sign up to cladwell here. Use the code wolfatmydoor.

If you do need to buy something it has a great section to recommend what to buy to fit in with the clothes you already have. Over the last year I have strived to buy less and invested in pieces from quality and ethical brands such as People Tree. Their prices cost slightly more but it’s worth it. Their fair trade organic clothing is ethical and beautifully made and oh yeah it lasts.

After a month or two you have a good Marie Kondo style clear out. You are left with items you actually wear. Here are three easy things you can do with the clothes you decide to part with instead of filling landfill:

  • Sell good items on your local Facebook sites. Just click the marketplace button on the app and snap your clothes for some extra cash
  • Dye existing clothes to refresh them or create something new Dylon does an excellent washing machine dye in a pot with everything included
  • Use the fabrics to create something new. I’ve cut up t-shirts to make macrame plant hangers or draft excluders. Check out my Pinterest board for ideas

Personal care

Ok so my favourite find this year is Who Gives a Crap toilet paper.

I love everything about them. They are wrapped in beautiful PAPER wrapping so zero plastic. They’re made of good stuff and they raise millions for Water Aid. Oh and you can subscribe to a delivery so you never run out. It comes in a big cardboard box so you need to store it. Buying like this saves money too and it’s cheaper then buying at the supermarket. Want more money off? Here’s a fiver to spend with them.

I also invested in a Tulip cup to stop using tampons and pads. Let me know if you are going to order as I have an offer for a free gift.

There’s loads of small things you can do like swapping from detergent to washing eggs. Get yourself some old fashioned washable handkerchiefs instead of using packet tissues. And lastly I’ve changed to bamboo toothbrushes to save on plastic. You can purchase them on amazon.

Food and Drink

Coffee cups have been hot in the press this week with a tax on disposable cups being introduced. You can pop into most bargain stores and grab a reusable cup to take out your coffee from kitchen to car. Even better invest in a slightly more fancy KeepCup cup. You can get a super fancy cup from them. You can even design your own and buy one of their reusable straws. If you sign up to an account you can get 15% off your first order with them by using the code uksubscribe15

Another tip for the kitchen is to start using glass and Silicone products. Jars are fab for storing stuff and free if you re use jars you get with other products. Silicone is great for all sorts of products such as baking tray liners to replace tinfoil.

Finally the war on supermarkets. First of all there’s some great ideas like having plastic free aisles. You can put pressure on supermarkets and the government by signing this petition.

Supermarkets are not doing enough. I got my Tesco delivery this week and asked for no bags. I ordered all loose fruit and veg to avoid all the plastic. I also love their paper veg bags as they fit the compost bin perfectly. I was so frustrated to find the entire order full of those tiny plastic bags you get on the produce aisles! They’re so tiny and thin they’re not even reusable. Come on Tesco use your brain, no bags means NO BAGS. I just found out that my local farmers market is very local so I’m turning off my delivery subscription and changing my shop, sorry Tesco.

So that’s where I’m up to with my own war. Next on the list are:

  1. Shopping bags and making my own cloth bags for veg items.🥕🍅🥑
  2. Beauty products – recommendations please 💄💋
  3. Medications – this really bothers me as it creates a ton of waste each month. I don’t have a solution do you?💊💊💊
  4. Nespresso pods – I am a Nespresso junkie. They get me through the day but the waste is bothersome. Nespresso recycle their own pods but I don’t often get them as they are so expensive. Anyone got any ideas on other brand pods?☕️☕️

I hope you enjoyed reading my guide. Please remember to say hello and share your war on waste ideas below.

To find out more on reducing waste visit http://www.goingzerowaste.com

All opinions are my own. None of these are paid recommendations but genuine reviews with money off, where I could find it, to help you out.

How to do a bootfair

I think bootfairs are uniquely British. They’re similar to flea markets but different. Everyone rocks up in their vehicles, puts out a rickety decorating table then flogs their unwanted stuff from their boot (trunk if you’re American).


So I wrote a little guide to bootfairs here:

  1. Clear out all your junk and think it looks like the best stuff ever. Mentally top up in your head the £200 you’re gonna make.
  2. Rope in someone unsuspecting friend, who has never done a bootfair so will be unjaded.
  3. Cram it all into your car with your decorating table and camping chairs. Get your float and price labels ready and feel smug at how organised you are.
  4. Get up at some ungodly hour on the most holy of lie in days, Sunday.
  5. Drive thanking the fact no one else mad enough to be up at this hour because a) you can’t see out any mirrors or windows and b) you can’t move the gear stick without everything falling and crushing your arm.
  6. Get there and feel much better that you’re not the only one insane enough to do this.
  7. Panic pull everything out the car and frantically set it up whilst the bootfair pros pull and poke your old belongings shouting ‘how much, how much’.
  8. Panic more because you left your float at home. Go through every pocket, purse and the  footwells of the car in search of change.
  9. Step back and survey your table and notice how your stuff now looks like the shittest stuff ever and realise you’re probably gonna make a fiver not £200.
  10. As people paw at your old stuff you feel slightly naked and like everyone is judging your life right now.
  11. Get really angry and defensive when someone haggles over your possession that is £6 and they want to pay £5 but you’re not budging. That waffle maker was £30 only 3 months ago (fuck you).
  12. Get bored and take a wander amongst the rows and rows of everyone else’s toot. Aisles of soup bowls and picture frames. Clothes wracks of plus sized sequins and every species of animal made of bone china.
  13. Spend your forgotten float at the burger van to break a twenty you had in your purse and sneakily get more change. Try to get something that costs nothing but that is so suspect it should come with a public warning. Its also probably safe to eat a ‘burger’ as a vegetarian because it’s never even seen a cow. 
  14. Return to someone haggling with your buddy over a 20p item. They want it for 15p and it’s 5 pence you difference you cheapskate.
  15. Have a little rush of sales and feel energised by the fact you’ve got up at 6am, broken your limbs hauling boxes and bags and sat for 5 hours in a field for £20. That’s £4 per hour pay and there’s two of you so it’s £2 per hour, illegal.
  16. Get all energetic and upsell everything to everyone and realise you’re the best market trader in the world. Make another tenner.
  17. Feel hard done by when they collect your £5 pitch fee
  18. Start to lose the will to live and stop chatting to people that come by, play on your phone feeling antisocial and refuse eye contact with everyone.
  19. Sink into dispear when you sell the waffle maker for £3 and realise you’re the mug 
  20. Start to panic that you’ll have to take half the shit back home again. 😱
  21. Realise there’s still an hour left and pray for a reason to leave. So you buy another coffee and eat into your £25 profit
  22. Battle with yourself not to buy the kitch picture on the stall opposite because you think will make your house all edgy and arty. You’ll only put it in the next bootfair, not sell it, and be stuck with it for life anyway.
  23. Sell a last few things for 20p because the thought of moving it again makes you feel sick.
  24. Start giving people stuff for free and feel like you’re the nicest person alive.
  25. Get so tired that you can’t cook so get Sunday lunch at a pub with your earnings and feel smug that it was free and oh well you got rid of a quarter of your junk.  

I secretly love a good car boot, if for nothing else the people watching. I also love seeing people’s stuff from their lives. I find them utterly exhausting for minimal return. But I like the idea that things are being reused and recycled, I can’t bear stuff going to the tip. Plus a they’re a great exercise in minimalising and deluttering and being able to afford a lunch out whilst on benefits.

What’s your best boot fair story or bargain?

Blink and you’ll miss it.

The sun barely shines in the bright cold sky. The cold creeps in every gap and forgotten tuck-in.

The bonfire burns old whilst the smoke writes the memories across the sky. Warming the sun bleached snow as it melts into clear furrows.

The land sighs as it sleeps, turns over, seeing the Sun isn’t shining she goes back to her dreams. The excitement and magic melts away, the only day you wish the sun took leave.

In a day the stream flows. Playing it’s cool melody on the slowly warming rocks. The pond might be frozen but it’s path is too risky to find out.

With fingers wrapped in gloves that make them too cumbersome. Take off the gloves, use your hands briefly before they freeze and become just as clumsy.

The crow carries the sound of winter on its breath, Its black heart never dies.Only chased away by birds of song, shrill and tinkling, dancing in the fragile sun.

All that’s left of the snow is the snagged fleece in brambles; fake snow that sparkles with dew. My fingers bleed on it’s purity as I snatch it from the branches.

Pines that defy the cold breathe their sent into the warming air. Something is afoot, but blink and you’ll miss it.

 

Some days are for warmth…

So today I woke up feeling pretty horrid. New meds are making me sleep for nearly 10 hours a night, and then groggy the next day. I guess this beats the 4 hours average I’ve had for the past few months.

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I’ve begun a new kinder morning routine. It mainly is about not rushing:

Wake Up | Check my journal (not phone) | Feed and let the dogs out | Enjoy coffee / breakfast | Put myself first with yoga or mindfulness | Get ready | Walk the dogs | Check the post | Plan meals and actions for the day

In today’s journal I had scheduled a Weight Watchers meeting, crafts with a friend, followed by a show at the theatre. After sleeping past the Weight Watchers meeting time, and walking the dogs, falling over in the mud, and nearly passing out I knew I wasn’t up to much. In the panic of pain and fatigue I cancelled everything.

Then I realised I did really want to see people and that I needed company and inspiration. I don’t know about you but I am constantly in battle with myself for shared time and alone time? So today I back tracked and rewrote the day. I’m sticking to 3 things at the moment so my new plan was:

  • Drive to the Cowshed to pick up craft materials
  • Meet with Helen, to eat her home made soup and chat and maybe craft
  • Make chickpea blondies

So I did all these things instead of a disaster it was wonderful. Driving through the autumn landscape in no hurry meant seeing the countryside in all it’s glory. Then getting home it’s all warm and cosy and the dogs were waiting.

Helen arrived with a box full of crafts, and her delicious homemade squash soup (I’ll endeavour to get the recipe). We chatted about life, and ideas, and drank coffee. We both, being spoonies, decide to keep the craft simple and make our own ‘advent calendars’. It was Helen’s idea as a way to be kind to ourselves. I provided the labels to write them on and we both came up with ideas for an action a day that would be treating or nourishing ourselves.

Thats all there is to it really. We wrote on luggage labels and decorated them with stickers. I ended up doing 31 to take me all the way to New Year, and have a whole month of adventures. The idea is to pick one each day to do. If it is completely impossible with your schedule we decided we would be allowed to swap one but you should then make time to fit in the discarded one so all the tasks are at least attempted throughout the month. I’ve decided to do mine with the food bank advent idea. In this I put an item of food into a box each day to donate to the local food bank.

Finally I made ‘chickpea blondies’ as a quick sweet treat, they sound odd but they are amazing. I found the recipe here. They are great for lazy days and you literally shove everything in the blender and bake. Oh and then eat of course, still warm from the pan with oozing bitter chocolate.

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What do you do to stay warm once the weather turns colder and the nights are shorter?

 

 

The Art of Slow

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Well I’ve chatted a lot about the negativity of chronic illness, I’ve also searched hard for the positive.

Recently I’ve managed to find myself in crisis, one of those moments when it never rains but pours. I made a list of ‘losts’:

  • My health
  • My work
  • My heart
  • My home

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Pretty huge things and I don’t have much left. But to reexamine the list, stop and breathe has truly been insightful. Despite my stubbornness I’ve been forced to halt and reassess.

  • My health  I do less things and a slower pace. These are things that I enjoy.
  • My work I transfer my skills to find something that fits with the above. Work is about love not money.
  • My heart It’s about time I stop letting others destroy me and love myself. In turn I make room for good people.
  • My home I simplify my home and living to make it work for me and love everything within it

So I welcoming ‘The Art Of Slow’ whatever this means! I’m discovering it day by day as a personal journey. Adapting to the seasons and the needs of each day as it comes. Savouring moments and building them into something special.

To start off I’m going to do a few of these 25 suggestions to savour November

Thank you chronic illness, you gave me the gift of slow…

 

#SeekingBeauty

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Right now I’m no words all emotion. I’m genuinely 💔  for America (and the rest of the world). We are a global community and need to extend our love beyond it’s borders.

My dear friend Beth @wisewordsfest posted her son’s wise words: “If we all stand close to the people that are unkind then they’ll learn from us how to be kind. If we are all a long way away they will never see that being kind works better” – he’s 5 going on a 105 in wisdom.

There’s so much truth and hope in his words. So let’s all take stock and breathe. We need baby steps to figure out this crisis on humanity. As part of my recent breakthrough in recovery I started using the #seekingbeauty. Finding small and beautiful sights and moments in the day. Please use it too and share all these tiny things that make the world a better place in the comments below or with me on instagram. If you use the # or tag me I may share a few of my faves in a future blog post.

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